Giving Lavi Life

Join this amazing journey - for more details visit Giving Lavi Life

 

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I'm 3 years old thanks to all the love and support of people like you.

The fact is - that a little bit and a little bit more and even just a bit more adds up to a lot.

All that it will take to save me and many other children is a few thousand more friends who will each give $18 or more (18 being "alive", in Hebrew), and invite 10 of their friends to do the same.

Remember: saving me means hope for many others.
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Together we can make a big difference

 
 

I believe that there is hope.

My name is Gili Ben Moshe. I'm Lavi's father.

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Whether through your support or more importantly, by taking an active part in our journey, we can make it happen.

It is no less than a miracle that our son is still alive, and it will take another miracle to save him. We know now that miracles can happen, and we are asking you to help.

I would like to invite you to a special growing group of people who care - we call "Lavi's Guardian Angels" club :-)

It is actually very simple - all it takes is some good will and a few minutes of your time.

There might be a cure - would you join us on our journey to save many more kids like our son?

 
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AMAZING LAVI

 
 
 
     
 
 

Vote for the real hero of this story

 
 
 
     
 
 

For matching donations or commercial sponsorship/support, please contact us directly

 
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About Dr. Paola Leone and the CGTC

 
 

Paola Leone, Ph.D.Dr. Paola Leone

Dr. Paola Leone is an Associate Professor of Neurosurgery and Director of the Cell & Gene Therapy Center (CGTC). As Principal Investigator at UMDNJ-Robert Wood Johnson Medical School for Gene Therapy for Canavan Disease, she leads all research activities at UMDNJ and the affiliated centers. Her research interests have included in vivo neurochemistry of epilepsy and gene transfer approaches for the treatment of neurological disorders. She has published extensively in the field of CNS gene therapy and conducted the first direct gene therapy trial using a liposome-based vector for a pediatric neurodegenerative disorder. In addition to applications of viral vectors and stem cells, Dr. Leone is studying pharmacological approaches in humans and in animal models of Canavan Disease, Amyotrophic Lateral Sclerosis, Tay Sach’s and other neurological disorders.

 
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Australian Support

 
 

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Part 1 - Mom and Dad discovering the illness

 
 
 
     
 
 

Part 2 - The fight to save me

 
 
 
     
 
 

Lavi's Birthday Celebration

 
 
 
     
 
 

לעוד הרבה שנים ביחד- הבקשה לעזרה

 
 
Hadar B. 2 years ago

חגגנו ללביקו שבוע שעבר יום הולדת 3, בבית איזי שפירא. והתלבטנו מאוד מתי לשתף ולפנות אליכם לעזרה. מוצאי יום העצמאות נראה לנו מועד מתאים...63 למדינת ישראל , בטח פעם היו ...

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Project Ended

 
 

Raised: $316,917

Campaign Duration: 218 days


 
     
 
 

Change Makers

 
 
Kav Lachaiim D.
$60,838
impact
Lavi BenMoshe
Israel
10101
visitors
$6,931
impact
Ron Rosenberg
Hoboken, NJ
1498
visitors
$3,256
impact
noa siboni
1474
visitors
$3,221
impact
Arnon Shafir
Cambridge, United Kingdom
5320
visitors
$2,887
impact
Sigal Srur
Tel Aviv, Israel
1139
visitors
$1,228
impact
tomer grinbaum
Israel
105
visitors
$1,049
impact
O.E.
Israel
6
visitors
$885
impact
Hanan Gelbendorf
Hoboken, NJ
880
visitors
$723
impact
Dan Mano
United Kingdom
547
visitors
$659
impact
SMS donations Nov 09
donated: $112,963
Kav Lachaiim D.
donated: $57,498
Mevo'ot Iron School 8th' grade
donated: $19,385
Bnei Akiva C.
donated: $6,132
Artist for Lavi Gan Shmuele
donated: $6,128
Australian Friends of Lavi
donated: $4,547
Arnold's 70th birthday 2.
donated: $3,513
Jamboree Event T.
donated: $3,061
דניאל ג.
donated: $2,700
S.Y.
United States
donated: $1,980

All Donors
 
     
 
 

Lavi

 
 
 
     
 
 

Lavi's angels around the world

 
 

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US tax-exempt

 
 

Donations in the US are eligible for tax benefits. 

Global Giving

GlobalGiving is a US 501c3 public charity working with give2gether to provide US tax-exempt donation capability to supporters of Giving Lavi Life and Kav Lachaiim.

 

The GlobalGiving Foundation's tax-exempt ID# is 30-0108263.

 
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Lessons of Lavi

 
 
 
     
 
 

Canavan Disease & Gene Therapy

 
   
     
 
 

Celebrating your birthday soon?

 
 

Would you consider dedicating your gifts this year to save the life of many kids? 

http://bawandinesh.name/wp-content/uploads/2009/05/birthday-gift-balloon.jpg
Ask your friends for a special gift - the gift of life for Lavi. You could do that by adding a personalized message to show them you care.

Celebrating your birthday soon? 

Most of us get presents on our birthday. Most of them are things you don't really need. If you or someone you know was born in October, consider asking your friends this year for donations instead of presents for your birthday.

Thanks for supporting Lavi's and many kids' journey!

 
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A year after Uvda, (Israel's version of 60 minutes)

 
 
 
     
 
 

His laughter can inspire many others

 
 
 
     
 
 

Q&A with Dr. Paola Leone

 
 
Question:

What is the Cell and Gene Therapy at UMDNJ/SOM?

Answer:

The Cell and Gene Therapy Center is a Translational Research Center, in which scientists study laboratory methods that can be used in clinical settings. Translational research is conducted in a way to make the results applicable to the particular population under study. The results are then used to translate the findings into medical practice that can be readily used in real life situations.

These settings include using either Stem Cell or Gene Therapy or both, in order to improve the health of patients affected by Canavan Disease or by other neurodegenerative disorders.

Visit the Cell and Gene Therapy Center online at http://som.umdnj.edu/cgtweb/

Question:

What are the current methods used to treat Canavan Disease?

Answer:

The current method is a pharmacological approach using a combination of drugs and supplements designed to benefit patients affected by Canavan Disease.
The Stem Cell method is still undergoing investigation in the laboratory to test the “proof-of-principle” prior to using it for human applications.

 
     
 
 

Lavi

 
 
 
     
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