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Research fund for Lavi Ben Moshe

Giving Lavi Life

Join this amazing journey - for more details visit Giving Lavi Life

No. of Supporters 12,746
Time left
26 Days
 
 
549 Days
 
 

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I'm 2 years old thanks to all the love and support of people like you.

The fact is - that a little bit and a little bit more and even a bit more adds up to a lot.

All that it will take to save me and many other children is a few thousand more friends who will each give $18 or more (18 being "alive", in Hebrew), and invite 10 of their friends to do the same.

Remember: saving me means hope for many others.
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a year after Uvda, (Israel's version of 60 minutes)

 
 
 
     
 
 

Help us get to 20,000 friends!

 
 
 
     
 
 

Together we can make a big difference

 
 


w GiliI believe that there is hope.

My name is Gili Ben Moshe. I'm Lavi's father.

Whether through your support or more importantly, by taking an active part in our journey, we can make it happen.

It is no less than a miracle that our son is still alive, and it will take another miracle to save him. We know now that miracles can happen, and we are asking you to help.

I would like to invite you to a special growing group of people who care - we call "Lavi's Guardian Angels" club :-)

It is actually very simple - all it takes is some good will and a few minutes of your time.

You could personalize a page and even add a pledge goal which you could communicate with your friends.

People like you from all over the world were able to raise 100's and 1000's of dollars and even more important - awareness for this cause.

There might be a cure - would you join us on our journey?

 
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Australian Support

 
 

To all our supporters in Australia

We have now set up a designated account for Lavi - for all those who would prefer to support us with a simple bank transfer. 

The account details are: 

ANZ BANK:

BSB 016 – 266

ACCOUNT NUMBER 1817-21877

ACCOUNT NAME:BEN MOSHE GIL

Address: 797 Hay st. Shops G1-G3, Perth 6000, WA

 

For further information you may contact Gili @ +61-41-6986991

We thank you all from the bottom of our hearts and hope you will pass on this message to all your friends and family. 

 

 
     
 
 

Thanks for your support - please leave a short message

 
 
Icon
S.L.
5 days, 11 hours ago

בהצלחה

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joseph C.
2 weeks, 5 days ago

good luck!

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tal G.
1 month ago

אוהב אתכם הורים יקרים וכמובן את לביא.
לא מפסיק לעקוב אחריכם מאז פורסם הסיפור על לביא אצל אילנה דיין.
תהיו חזקים ותמשיכו במה שאתם עושים.
אני מצידי ימשיך לגייס תומכים עד כמה שאוכל.
ושוב פעם
אוהב אתכם
טל גולדברג
ראשל"צ
0504701701

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Part 1 - Mom and Dad discovering the illness

 
 
 
     
 
 

Part 2 - The fight to save me

 
 
 
     
 
 

We can't let his laughter stop

 
 
 
     
   
 
By Email

Import your contacts and send email invitations.

Share with friends on FaceBook, Twitter or your favorite social network.

Be a Champion

Personalize your own give2gether page to inspire your friends.

 
     
 
 

Celebrating your birthday?

 
 

Would you consider dedicating your gifts this year to save the life of many kids? 

http://bawandinesh.name/wp-content/uploads/2009/05/birthday-gift-balloon.jpg
Ask your friends for a special gift - the gift of life for Lavi. You could do that by adding a personalized message to show them you care.

Celebrating your birthday soon? 

Most of us get presents on our birthday. Most of them are things you don't really need. If you or someone you know was born in March, consider asking for donations instead of presents for your birthday this year.

By clicking the link above, you can personalize your own gifts2lavi birthday page. Add a picture, and a short message. You could even add a pledge goal which you could communicate with your friends.

People like you from all over the world were able to raise hundreds and thousands of dollars and even more important - awareness for this cause.

 

Thanks for supporting Lavi's and many kids' journey!

 
     
 
 

Change Makers

 
 
  SMS donations Nov 09
donated: $112,963
  Kav Lachaiim D.
donated: $57,498
  Mevo'ot Iron School 8th' grade
donated: $10,224
  Artist for Lavi Gan Shmuele
donated: $6,128
  Australian Friends of Lavi .
donated: $4,547
  Arnold's 70th birthday 2.
donated: $3,513
  Jamboree Event T.
donated: $3,061
  דניאל ג.
donated: $2,700
  Bnei Akiva C.
donated: $2,286
  E.A.
United States
donated: $1,818
  Kav Lachaiim D.
inspired 92128 visitors,
making an impact of:
$60,838
Lavi BenMoshe
Israel
inspired 8327 visitors,
making an impact of:
$6,875
  noa siboni
inspired 1329 visitors,
making an impact of:
$3,151
Ron Rosenberg
Hoboken, NJ
inspired 1414 visitors,
making an impact of:
$1,456
  tomer grinbaum
Israel
inspired 82 visitors,
making an impact of:
$1,013
  O.E.
Israel
inspired 6 visitors,
making an impact of:
$885
give2gether Inc
Wilmington, DE
inspired 591 visitors,
making an impact of:
$754
Hanan Gelbendorf
Hoboken, NJ
inspired 788 visitors,
making an impact of:
$723
Gideon Slager
Amsterdam, Netherlands
inspired 162 visitors,
making an impact of:
$613
  L.F.
Plano, TX
inspired 38 visitors,
making an impact of:
$502
All Donors
 
     
 
 

NEW: US tax-exempt

 
 

Donations in the US are eligible for tax benefits. 

Global Giving

GlobalGiving is a US 501c3 public charity working with give2gether to provide US tax-exempt donation capability to supporters of Giving Lavi Life and Kav Lachaiim.

 

The GlobalGiving Foundation's tax-exempt ID# is 30-0108263.

 
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Lavi's angels around the world

 
 

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For matching donations or commercial sponsorship/support, please contact us directly

 
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Q&A with Dr. Paola Leone

 
 
Question:

What is the Cell and Gene Therapy at UMDNJ/SOM?

Answer:

The Cell and Gene Therapy Center is a Translational Research Center, in which the scientists study in the laboratory methods that can be used in clinical settings using for instance either Stem Cells Therapy or Gene Therapy or both, in order to improve the health of patients affected by Canavan Disease or by other neurodegenerative disorders.

Question:

What are the current methods used to treat Canavan Disease?

Answer:

The current method is a pharmacological approach using a combination of drugs and supplements designed to benefit patients affected by Canavan Disease.
The Stem Cell method is still undergoing investigation in the laboratory to test the “proof-of-principle” prior to use it for human applications.

 
     
 
 

Canavan Disease & Gene Therapy

 
   
     
 
 

our Blog

 
 
Published by give2gether Inc 8 months, 3 weeks ago

November 2nd is a significant day for us. On November 2nd Lavi turned 18 months old. In Hebrew, 18 is represented by the letters for "alive". According to the medical ...

Published by give2gether Inc 9 months, 2 weeks ago

On September 1st, Lavi joined the therapeutic kindergarten at Beit Issie Shapiro in Raanana. We had to struggle for Lavi's right to get there with no more than one ...

See all 2 posts
 
     
 
 

About Dr. Paola Leone and the CGTC

 
 

Paola Leone, Ph.D.Dr. Paola Leone

Dr. Paola Leone is an Associate Professor of Neurosurgery and Director of the Cell & Gene Therapy Center (CGTC). As Principal Investigator at UMDNJ-Robert Wood Johnson Medical School for Gene Therapy for Canavan Disease, she leads all research activities at UMDNJ and the affiliated centers. Her research interests have included in vivo neurochemistry of epilepsy and gene transfer approaches for the treatment of neurological disorders. She has published extensively in the field of CNS gene therapy and conducted the first direct gene therapy trial using a liposome-based vector for a pediatric neurodegenerative disorder. In addition to applications of viral vectors and stem cells, Dr. Leone is studying pharmacological approaches in humans and in animal models of Canavan Disease, Amyotrophic Lateral Sclerosis, Tay Sach’s and other neurological disorders.

 
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